Archive for the ‘Health’ Category

I am a fascinating case.

Friday, August 3rd, 2007

Today I had an appointment with my doctor, Kent Griffith.  Mainly I was there to have my clotting time checked, to see if my medications are doing what he wants them to.  This is actually a bit more problematic than one might expect.  Firstly, adjusting the dosage of anticoagulants is tricky to begin with.  Anyone who wishes to hear all about this in the context of another Gathman can check out older entries under “medical drama” on Cabell’s blog.

Secondly, the dosage turns out to be not quite what it should be.  Wednesday evening they had me give myself a shot of Lovenox at the hospital*, so I’d learn how to do it, and then they sent me home.  We couldn’t get the prescription for it filled until the next day.  So, Robin went in to Schnucks** yesterday morning to pick up the prescription.  Since it’s individually loaded syringes, it comes in a big box, and the girl had to first find the little prescription bag with the paperwork, then locate the box on another shelf.  Robin said she seemed pretty clueless.   I gave myself the first injection at home, and was off to a day of sitting on the couch reading.  About 1 in the afternoon the phone rang.  It was the Schnucks pharmacy.  “Could you look at the name on our label on the box?”  It wasn’t my prescription.  It was half the strength it was supposed to be.  They apologized profusely, and sent a guy out from town to swap for the right stuff, and I called Griffith’s office to tell them.  Griffith called back and said not to worry, just use the new stuff for the nighttime dose, and it should be okay.

This morning I gave myself my morning shot, and suddenly thought, “Did I do this last night?”  Yeah, that’s right.  After all the hoopla, and a fair amount of dissing Schnucks pharmacy, I forgot my nighttime shot.  Oh, well.  Griffith didn’t seem too worried about it today.  But my INR is only 1.2 right now, and he wants it between 2 and 3.  So we’ll see.

Meanwhile, Griffith asked if I would mind talking to an intern who was shadowing him, and I said sure.  He sent in this very young Indian woman (Dr. Kulayat, I believe — didn’t see it written down, and not to be confused with Dr. Kulaylat, my nephrologist), who asked me how I felt.  This isn’t that great of a way to elicit a medical history, to my mind, but pretty soon I just told her the entire story.  She of course asked if I was dehydrated during my ride (no), if I smoke (no), if I’ve had any clotting problems before (no), etc.  She was puzzled, but she can join the club.
Griffith says he may eventually send me up to St. Louis and possibly having me be a subject in the “Grand Rounds”, where I guess they show interesting cases to all the doctors they can rustle up.  I’m still hoping for a co-authorship on whatever paper comes out of this.
*It’s just subcutaneous.  Really easy.  My friend Harry back when I was a boy scout was diabetic, and he had to inject himself with insulin daily.  We all thought it was the coolest thing on earth.

**The local grocery store chain, and pharmacy.  It’s actually based in St. Louis, where there are actual Jews, but I guess people get used to it.  Here nobody even sees it as a joke.  I had a friend in Tucson whose last name was Schmalzel, and people always thought he was saying “Schlemazel.”  This led to some occasions when people actually refused to believe it was his name.

I aten’t dead.

Thursday, August 2nd, 2007

Well, some of you may be wondering why the long hiatus in posting, and others may have heard, but the good new is that last night they let me out of the hospital.

What the hell happened? Okay, here’s the chronology. Saturday, July 21: I ride from Pearl River to the Cafe du Monde. Sunday, July 22: Gerry and I drive (about 3 hours) to Josephine, Alabama, where my nephew has his beach house. Monday, I get up, have a cup of coffee (rare for me) and a sweet roll, and go to work on building the addition to the deck. When we went out for lumber at one time, I had some abdominal pain, but I thought it was gas or stomach upset from unaccustomed caffeine. The next day I also had a short spell of “gas pain”, which I also dismissed. Then Gerry and I drove back to
Pearl River, and Wednesday we went for a ride on the St. Tammany Trace. I don’t remember any pain that day. Robin came down that night. Thursday we sort of hung out, I think I had a little pain in the morning, then Friday we left for Cape and again I thought I’d eaten too much or something (yeah, I’m slow on the uptake). Saturday morning I went for a ride, drove to town, started feeling some pain around noon, went home. By 3 PM the pain was still getting worse, and we went to the emergency room.

At the emergency room a nurse saw me, took my BP and temp, took a little medical history, and then sent me into the waiting room. An hour later the pain level was up even more. How much? Well, I’ve had some experience using a pain scale from 1-10 over the last few days, something like this:

At 4 PM it was somewhere around a 6, i.e. “dreadful”. Robin went back and tried to get me moved up in the triage queue. The nurse saw me again, took my BP and temp, said, “It hurts worse now?”, and sent me back. At 5 PM I was curled up in a ball on the floor of the waiting room. I think this was probably around a 9, although I may be a wimp. Usually not, though. I’d have to describe it as someone, having recently stabbed me in the lower left abdomen, now wiggling the knife blade around. Robin got up to try to persuade them to get me some pain meds. They couldn’t do anything yet. Finally I got up and sort of staggered over to the desk, where I explained to them as loudly as I could that I was in FUCKING pain and could they please DO SOMETHING. About then it was actually my turn, and a nurse was coming up with a wheelchair. She started berating Robin: “Creating a scene in the waiting room isn’t going to get you treated any faster.” Robin didn’t take well to this, words were exchanged, and next thing you know the nurse was ordering Robin to get out of the treatment room. At this point Robin leapt up and ripped her throat out with one swipe of her fangs. I got some pain meds, and pretty soon Robin and I were in a hospital room. And, by the way, I received nothing but highly competent, prompt, and friendly care the rest of the time. It was just the emergency room people that would have let me die on the floor.
So, what happened? I guess the best test to answer that was the CT angiogram of the kidneys that I had yesterday. The main renal artery to each kidney is wide open, but some of the next level arterial branches are partially blocked with blood clots. This is particularly severe on the left side, where the pain was appearing.

Why did this happen? Yeah, anyone who knows should send the answer to my general practitioner, cardiologist, nephrologist, urologist, vascular surgeon, and hematologist. I’ve had the proverbial cubic buttload of tests done over the past few days, and nobody really knows. Cabell once had a deep-vein clot in her calf, and it turns out she has a genetic clotting anomaly called Factor V Leiden that makes you somewhat more prone to clots. We had the other two girls tested: Sophie has it but Hannah doesn’t. Needless to say, we’re waiting for my test results now. However, usually this causes clots in veins, not arteries, and nobody could say why the kidneys alone would be affected. And believe me, after both a transthoracic and transesophageal echocardiogram, another CAT scan, and a brain MRI, we’re pretty sure nothing else has any clots, my heart is fine, and so on. So, I have appointments with scads of doctors, and maybe we’ll find out more later. Or not.

Does this have something to do with MO2NO? Well, it’s awfully tempting to make a connection. 52-year-old man rides 730 miles in 9 days, then gets blood clots in his kidneys. Clearly the blood clots were caused by the bike ride. Okay, I’ve heard of the post hoc fallacy too, but you have to wonder. The problem, as several doctors said, is that there just isn’t much known. Not many people do biking to that extent, and so there aren’t enough clinical studies to draw conclusions.

Meanwhile, for the immediate future, I asked my GP Kent Griffith about my recommended exercise level, and he used the term “couch potato.” Which is fine at the moment, as I’m still in some pain. It’s kind of like you’d have if, 5 days ago or so, somebody stabbed you in the abdomen and wiggled the knife around a while — now it’s sore. Kent gave me 650 mg Vicodin for it. Last night when I got home around 9 I took one, and by 11:30 I was lying on my bed feeling like an astronaut during takeoff — the acceleration had me pinned down. I forgot that I hadn’t eaten anything since about 3 PM before that, so I had a half a sandwich, and eventually got to sleep.

Anyway, I apologize for long, detailed discussion of my medical condition. That’s what old people talk about, isn’t it? Hoping to be up and around soon. Oh, and I really am going to do some picture posts for MO2NO, now that I have computer access again.